Many healthcare professionals and researchers specialize in the diseases represented by the organizations that make up the Rare Bone Disease Patient Network.

These professionals are keen to connect with physicans around the world who have patients with rare bone disorders, as well as with researchers who are interested in collaborating.

It is not uncommon for patients to be misdiagnosed with a rare bone disease, and the consequences can be devastating.  Professionals specializing in rare bone disorders are normally more than pleased to assist with information to ensure correct diagnosis and care.

To connect with the top professionals in the rare bone field click here and look for the Medical Advisory Panel and other references on the sites of the Rare Bone Disease Patient Network organizations.