Paget Foundation - Paget's disease causes bones to grow too large and weak. You can have Paget's disease in any bones in your body, but most people have it in their spine, pelvis, skull, or leg bones. The disease may affect only one bone or several bones, but it does not affect the entire skeleton. Bones with Paget's disease may break more easily, and the disease can lead to other health problems.
The Rare Bone disease Patient Network is a coalition of rare bone disease organizations, established to share information, expertise and resources, in a collaborative effort to increase awareness, understanding, and research of rare bone disorders.
OBJECTIVES
Mentoring and Knowledge-Sharing
Networking Opportunities
Joint Bone-Related Projects
Joint Awareness and Advocacy Activities
Integration of Rare Bone Disease Groups Into Bone Community
PROGRAMS
1st Advances in Rare Bone Diseases Scientific Meeting
October 22-24, 2008, Bethesda, Maryland
Participation in Scientific Meetings to Exchange Knowledge and to Promote Rare Bone Diseases (Orthopaedic Research Society, American Society for Bone and Mineral Research)
Website to Provide Resources for Rare Bone Disease Organizations
Meetings to Exchange Knowledge, Provide Mentoring, and to Determine Priorities for Expanding Awareness, Research, and Advocacy
Contact Us - For Information or Membership Details
